Genetics at GOSH

I have been wondering if I would die of old age before I got my implant done….

I have two appointments at the RNTNE Hospital 6th (audiologist and hearing therapist) and 13th December (consultant and panel). Hopefully will know when op likely to be after that.

Today I went to Great Ormond Street Hospital to see the geneticist as two of my five children have inherited high-frequency deafness. Continue reading “Genetics at GOSH”

Second assessment

Second visit to the hospital today!  The audiological scientist (nice lady from South Africa) had arranged to see me at 12.30 – I suspect she missed her lunch break to fit me in!  She adjusted the settings on my Naidas to see if she could improve the quality. My hearing loss does make it extremely difficult to fix with hearing aids but I had found the Naidas were too loud. I still couldn’t hear speech clearly and could hear all the horrible stuff like road noise and background noise. Continue reading “Second assessment”

First assessment

Today was my first assessment at the Royal National Throat, Nose and Ear Hospital.

The hospital is easy to find if you turn left not right out of King’s Cross – minor loss of bearings which makes a change – I usually walk miles in the wrong direction.

Once at the hospital I presented myself to Reception Continue reading “First assessment”

Quick update – appointments

Just when I thought they had forgotten me I have received a letter from the Cochlear Implant Department at RNTNE. I have appointments to see audiological scientist on 12th July, followed by a hearing therapist. Then a week later on the 19th I see the Consultant Surgeon. No idea how soon after the assessment they will schedule surgery. I assume they can’t do all the appointments on the same day because someone has to evaluate the assessments before seeing the surgeon. Monday is a busy day for me but fortunately no one booked in yet so I have booked those two days off.

I am very keen to listen to music again, although I have no wish to use the telephone!  Can I be selective?  The staff at work are very concerned that I am going to be able to hear what they are saying behind my back.

Cherry

Aims and percentages

I am back from my “enforced holiday” and not that pleased to be back!

Letter here from the the Royal National Throat Nose & Ear Hospital – not an appointment fortunately. I was worried I would have missed it.

Just a long questionnaire to fill in including asking me for three main reasons for wanting a cochlear implant. Hard to answer really. Continue reading “Aims and percentages”

Later that day

Later same day in response to questions: my hearing loss was initially congenital.  As a small child I assumed that my grandparent’s piano had dud keys at the top end. Both my sons have inherited high frequency hearing loss and my mother said several of her relatives were deaf. Continue reading “Later that day”

I need to do something radical about my hearing

My hearing has deteriorated to a point that I need to do something radical about it. Hearing aids amplify what I can hear, they do not replace what I have lost. I have high frequency sensorineural hearing loss in the severe/profound range. So – with two hearing aids, I can hear coughs, sneezes, traffic noise, engine noise, clacky shoes, but not speech which is a very complex sound. Continue reading “I need to do something radical about my hearing”